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Endometriosis: Stage 4

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Please share this video. It is very important to get the word out about Endometriosis.
Since this video is so long I have added the time of major talking points.

0:09 Reason for my absence from YouTube
1:20 Something inside of me is wrong
2:50 Actual diagnosis
4:10 Gynecology Oncology
6:20 What is Endometriosis
8:35 I woke up from surgery with a catheter on
11:40 Lupron injectons
12:42 Side effects of Lupron
13:50 Health insurance/ Endometriosis is an expensive disease
16:28 Getting pregnant


I was recently diagnosed with stage IV (severe) endometriosis. I have been gone from YouTube for 2 years and this is why. This is my first time publically announcing this. I have been struggling with sharing something so private because this disease has essentially changed my life. My mind was going in a thousand different directions when making this video because it was extremely difficult taking about something that I am still very emotion over. I chose to share this information publically because I want to create awareness for this disease. If you are experiencing the following symptoms please contact your primary health care provider:
- painful periods
- pain with urination or bowel movements
- excessive/heavy periods and/or spotting
- pain with intercourse
- pelvic pain/abdominal cramps/back pain
- difficulty becoming pregnant

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50 Comments

    Popular Comments:

Bel Robinson . 2018-12-11
Pray that you are doing well
121 2 . Reply
Shay B . 2018-11-02
Thank you for sharing. ❤
121 2 . Reply
kreyol freedom nik . 2018-10-28
I was diagnosed with stage 4 Endometriosis in October 2012 and had my surgery in November 2012. I spent a week in the hospital, and I have been pain free ever since. My doctors were awesome, and they saved all of my organs (I had to cysts on ovaries, and was taken out just in time). I did experienced weight gain, and was put on birth control for a few months (I hated the way it made me feel, I quit taking them). I start eating better, toss out all of my beauty care products (body and hair product) that contain chemicals, less stress, exercise more, drink plenty of water, relax more, plenty of sleep.

My doctor is trying to get me pregnant soon, but I'm not married. He said I might have to use donor eggs, because I haven't had a menstrual cycle since December 2015. I feel so much better, I don't know if I want to try to have any kids (ivf is too expensive) lol. I just buy or create a reborn doll in place of a real baby. I know it sounds weird, but it helps with my healing. I pray that one day I become a mother, and I pray that you will, too. You're not alone. I wish you and everyone who's suffering and battling this horrific disease the best outcome and stay strong. You will get through this.
121 2 . Reply
Anna Gantt . 2018-09-27
Thank you for sharing your story and being brave to speak publicly. I just had lapocrscopic sugery and it found that I had endomestrosis and scar tissue through my pelvic area, infused my bladder to my uterus, and it's in my buttocks. My nexplanon birth control was removed and was given mirana but have been on birth control since the 11th grade and I'm now 28 with no children yet. Idk my doctor's plan yet but I was wondering if i can get your doctor's information as mine is just a general ob/gyn. I want to be proactive and stop this progression before it gets any worse! I have sc state insurance and rather have the best doctors in the country even though as you say this is a very expensive disease.
121 2 . Reply
Krista Tolar . 2018-09-23
Thank you for sharing, I'm at the beginning of the endometriosis journey, been it serious pain for years.
121 2 . Reply
Novelyn Dayo . 2018-09-22
you can change you background black and white combination of spots.
121 2 . Reply
Elizabeth davila . 2018-09-10
She's bleeding alot every 30 minutes :(
121 2 . Reply
Nadine Barrett . 2018-09-01
I'm so sorry to hear about your experience but I'm even more sorry am just seeing your video, reason being I had endometriosis for a very long time before I found out. As a teenager I started having extremely painful periods painful to the point where I could not function for like the first 3 to 4 days even when being on painkillers.
As a teenager I went to a specialist and was told I had dysmenorrhea and was given birth controls to help with the pain but that didn't help much after getting married I went to a gynecologist and found out that it was endometriosis and it had spread to different areas but especially my rectum as a result I had pain during my period when I needed to urinate and the pass my stool.
I was told I need to do surgery and that they would have to remove a section of my rectum pin it and wait for it to heal while in the meantime I use a bag.
I could not afford the surgery and so my gynecologist suggest treating it by allowing me to take minigynon 3 or 4 months straight this he said would reduce the amount of time i had my period thus starving the endometriosis and slow down its growth.
This is what I have been doing since that time which is over 10 years and it has been working for me it has made a big difference. I have not done surgery I'm only doing that and am living a pretty normal life. and over the years the pain has reduced quite a lot so I am actually happy I could not afford the surgery and I was also pressured to have a child saying it would it could help.
I did some research and found it doesn't always help with some women it helps but not with everyone so I did not decide to have children to help with the endometriosis I hope this information may help someone and I'm sorry you went through so much with yours.
121 2 . Reply
Nadine Barrett . 2018-09-01
I'm so sorry to hear about your experience but I'm even more sorry am just seeing your video, reason being I had endometriosis for a very long time before I found out. As a teenager I started having extremely painful periods painful to the point where I could not function for like the first 3 to 4 days even when being on painkillers. as a teenager I went to a specialist and was told I had dysmenorrhea and was given birth controls to help with the pain but that didn't help much after getting married I went to a gynecologist and found out that it was endometriosis and it had spread to different areas but especially my rectum as a result I had pain during my period when I needed to urinate and the pass my stool. I was told I need to do surgery and that they would have to remove a section of my rectum pin it and wait for it to heal while in the meantime I use a bag. I could not afford the surgery and so my gynecologist suggest treating it by allowing me to take minigynon 3 or 4 months straight this he said would reduce the amount of time i had my period thus starving the endometriosis and slow down its growth. This is what I have been doing since that time which is over 10 years and it has been working for me it has made a big difference. I have not done surgery I'm only doing that and am living a pretty normal life. and over the years the pain has reduced quite a lot so I am actually happy I could not afford the surgery and I was also pressured to have a child saying it would it could help but I did some research and found it doesn't always help with some women it helps but not with everyone so I did not decide to have children to help with the endometriosis I hope this information may help someone and I'm sorry you went through so much with yours.
121 2 . Reply
Nadine Barrett . 2018-09-01
I'm so sorry to hear about your experience but I'm even more sorry am just seeing your video, reason being I had endometriosis for a very long time before I found out. As a teenager I started having extremely painful periods painful to the point where I could not function for like the first 3 to 4 days even when being on painkillers. as a teenager I went to a specialist and was told I had dysmenorrhea and was given birth controls to help with the pain but that didn't help much after getting married I went to a gynecologist and found out that it was endometriosis and it had spread to different areas but especially my rectum as a result I had pain during my period when I needed to urinate and the pass my stool. I was told I need to do surgery and that they would have to remove a section of my rectum pin it and wait for it to heal while in the meantime I use a bag. I could not afford the surgery and so my gynecologist suggest treating it by allowing me to take minigynon 3 or 4 months straight this he said would reduce the amount of time i had my period thus starving the endometriosis and slow down its growth. This is what I have been doing since that time which is over 10 years and it has been working for me it has made a big difference. I have not done surgery I'm only doing that and am living a pretty normal life. and over the years the pain has reduced quite a lot so I am actually happy I could not afford the surgery and I was also pressured to have a child saying it would it could help but I did some research and found it doesn't always help with some women it helps but not with everyone so I did not decide to have children to help with the endometriosis I hope this information may help someone and I'm sorry you went through so much with yours.
121 2 . Reply
Prima . 2018-08-20
Thank you for sharing - I am in a very similar health situation with unfortunate health care circumstances. Your Doctor sounds great...I wish, I could see him...I'm scared shitless, I'm in agony almost everyday...no one believes me besides my immediate family but even they struggle to understand how this disease is shutting everything between my ribs and knees down.
121 2 . Reply
Miraclebaby30 . 2018-08-16
Endometreosis is a symptom of Fibromyalgia. I have have stage 4 Endo too
121 2 . Reply
Soosoo21568 Com . 2018-08-03
She had a baby but I don’t know why she didn’t share her pregnancy story ?!
121 2 . Reply
cosmic light . 2018-07-12
lupron did not stop my period at all. 8mths on it I had even heavier periods and worse pain, I also got hot flashes, mood swings and zits like crazy. Thanks for sharing your story. I am scared to know the damage it's caused to my organs since I've been dealing with this for again 24yrs. I get stabbing pains in my rectum and vagina. It sucks when the pain comes in full force when I'm out in public because it's hard to stand up or walk. my uterus feels like it's being drawn and quartered whenever I try to exercise or do daily chores. I've been getting pain when I'm not even on my periods. Glad there's other people out there who experiences this. for too many years I thought it was just me over exaggerating it and that I was crazy.
121 2 . Reply
Angi Jansen . 2018-05-29
I literally had the exact same experience as you :( it was horrible (i had a catheter too). I had endometriosis on my bladder too, and i had surgery 3 years ago, and now I think its back, because I am having the same symptoms again.
121 2 . Reply
Brooke Gainer . 2018-05-17
I gained 45lbs on lupron btw
121 2 . Reply
Brooke Gainer . 2018-05-17
Thank you so much for sharing. I actually stayed crying cause I understand this so much. My endometriosis is in my uterus. I been dealing with this pain for years. I had the surgery which worked for 2 years then the pain came back. I then tried the lupron for 9 months (that's a whole other story) but once I got of the lupron I got pregnant a month later but unfortunately had a miscarriage. Well say all that to say never give up ladies! We are as strong as they come. Keep hope and faith
121 2 . Reply
Melody Jordan . 2018-05-02
Thanks for sharing!
121 2 . Reply
taj simpson . 2018-04-23
Thank you so much my daughter is going through the same thing stage 4 Endometriosis she's 31 and no kids and one day would LOVE to have Kids it's been an on going thing since early High School your information is so helpful...THANKS!!
121 2 . Reply
Beautifulbenatural . 2018-04-09
Wow...I am going to the doctor bc I am showing signs...This video was so helpful...
121 2 . Reply
Elizabeth Miranda . 2018-04-03
I’m sorry you went through this. I know it’s not easy I’m going through a similar situation. Just wanted to know which were your symptoms besides pelvic pain. Ever since I was 15 I always had pain fever on my period never knew that was not normal. I’m 29 now.
121 2 . Reply
scorpiorising90 . 2018-03-26
Your makeup is beautiful
121 2 . Reply
Tiffany Lewis . 2018-03-22
Sry this happened to you prayers up I had surgery the 13 th of this month lots of pain
121 2 . Reply
im too cool 4 u . 2018-03-11
I feel sorry u been through a lot my prayer is may ALLAH swt give you and all of us cure amen suma amen
121 2 . Reply
Shantell Wilson . 2018-03-01
BLESSED is the barren woman, for she is the mother to many.. God got you girl! From one teacher to the next, KEEP YOUR HEAD UP💗💗💗
121 2 . Reply
Nevea Areklett . 2018-02-24
<3
121 2 . Reply
Ms AL . 2018-02-20
My same story, I have stage four Endo! It horrible, but God is still on the thrown! We will be fine!
121 2 . Reply
courtney nice . 2018-02-15
How old are you? I'm going through the same issues. I have been blown off for years about painful cycles. You are so right there's not enough awareness about this disease. I'm ready to sue all of these docs who have never listened to me over the years. The fact that I may not be able to have kids will bring me great sadness. But thanks for sharing your story and prayers and blessings to you.
121 2 . Reply
Joi Israel . 2018-01-31
Thank you for sharing! I’m battling stage 4 Endo right now. It’s stressful but I’m encouraged to keep going. Thank you for encouraging all of us.
121 2 . Reply
Isaiah Cantoran . 2018-01-21
I know what your going through I am so sorry ...thank you for sharing ...lean on the Lord He will carry you through this sis...God Bless you abundantly...praying for your healing
121 2 . Reply
Natosha Hernandez . 2018-01-11
Thank you for sharing your story. I feel this may be where I'm headed. I don't feel I am being heard, I too have been back and fourth to the doctor. Praying for a positive ending.
121 2 . Reply
P Whylie . 2017-12-15
Hi, thanks for sharing. I was just diagnosed with stage 4 endometriosis. I had surgery and my appendix had to be removed. It's only been a month since the surgery. I'm so glad you mentioned the treatment. I didn't know it was to put you in menopause. I am working on getting pregnant as soon as I heal from surgery and then take it from there. I wish you the best of luck with your future pregnancy. I know how it feels for the doctors to rush a pregnancy.
121 2 . Reply
Godislove . 2017-11-30
Same exact story ☹️
121 2 . Reply
Sir Charles Mormont . 2017-11-29
Thank you for sharing. It took me 10 years to be diagnosed with PCOS. I think I probably have endo, too, but it is SO HARD to get doctors to take you seriously. Do you have any advice about how to maintain a productive career when you're in pain and bleeding all the time? I've been bleeding almost every day for the last 2 months and it is really starting to take a toll.
121 2 . Reply
LM Lori . 2017-11-26
I really feel all your pain that you were going through with this disease. Last year I was diagnosed with endometriosis, had a surgery and after that they put me on 4 months of induced menopause and it was like living hell, with all the nasty side effects of it...Now I am alright , just trying to have a baby and pray to god that everything's gonna be ok. Stay strong and positive, you are wonderful! God bless you!
121 2 . Reply
carrie Jones . 2017-11-19
i have recently been diagnosed with severe Systemic Stage 3, 9 weeks ago via exicision laparoscopic surgery.
121 2 . Reply
SHINOHARA AYUMU . 2017-11-06
if i got 6x5 cm endometriosis, and I feel it growing, what should I do?
121 2 . Reply
Ere Malik . 2017-10-31
Just diagnosed with stage 4 Endometriosis. Have been through hell pain since 2 years but didnt know it was due to this mystery disease!!
121 2 . Reply
Royal 1 CC . 2017-10-22
Thank you so much for sharing your story. I just found out that I have it through surgery. Continue to be strong. Thank God you don't look like what you been through. You are gorgeous!!!!
121 2 . Reply
Shelby Conley . 2017-10-10
I'm 22 with stage 4 Endometriosis just got the surgery to fix it
121 2 . Reply
Lucks .Cruella . 2017-09-25
Everyone told me it was normal...every doctor... 17 years later at 32... I'm told it endometriosis. The pain is excruciating, I contemplated doing my own surgery. Trying to schedule surgery now
121 2 . Reply
Gabrielle. Haire . 2017-09-21
15 years & finally " it's not in my head " I've got DIE disease & there's so much research to be done. #EndoSister 🎗
121 2 . Reply
quishe03 . 2017-09-03
Tysm for sharing. Very personal & private time & you gave us information to educate. Thx again for this. Be blessed.
121 2 . Reply
mushillini . 2017-08-31
I am literally sitting here after two surgeries within two weeks. My last surgery was yesterday so I'm in bed looking up as much information as I can find. I'm in stage 4 as well. Thank you so much for telling me your story. I will have to take Lupron after I recover and that part is making me very nervous.
121 2 . Reply
Ylianna Perez . 2017-07-21
I think I might have the same thing because I've been dealing with it too and I wanna know what your period is like after surgery?
121 2 . Reply
C.C. Cacklesworth . 2017-07-17
Yes, I am in it also. The lack of concern for women in pain makes me looney. Great job speaking about it. I still cant believe what you have to endure with this illness.
121 2 . Reply
Mizpah Verdeprado . 2017-07-04
Thanks for sharing your story! Bringing awareness is such a great thing especially on this hard-to-diagnose chronic illness. I was diagnosed with endometriosis in 2010 and had my first surgery then. Starting last year, the dreaded endo pains were back and I've been going into emergency many times. And you are right, it is very very costly most especially that I just recently moved to Canada and I'm not covered by the government's healthcare here. We fought hard with my travel insurance because they won't cover anything related to it after the first emergency. We had to keep applying to other insurance companies and hope that they won't make a big fuss about my previous admissions to the hospital. I also feel for you about the doctor putting pressure on having a baby. Before I was even married (haven't even met my husband yet), my doctor back in the Philippines kept telling me that I should save my eggs and start researching and saving up for a surrogate mom. That's crazy! I hated each visit until I started to see another gynecologist. Anyway, the doctors that I'm seeing (gynecologist and oncologists) now are wonderful. They're huge blessings! I have an appointment in a week and that will be to discuss about the details of the surgery. Hope it'll be soon. Can't wait to get all the lesions and cysts out.. and start feeling normal again. Thanks for sharing your story! Hugs!
121 2 . Reply
pf243 . 2017-06-29
I went through the same thing, laparoscopy and all. mine was located on colon. we must believe it gets better. I had a fiance (we no longer together) but the pressure is real, so I feel you.
121 2 . Reply
Aristide Loua . 2017-06-28
Thank you so much for sharing your story. My significant other has been dealing with Endo too. She has yet to be diagnosed, awaiting surgery, but the symptoms do show, besides her having gone through colonoscopy, endoscopy, scans, etc that came negative (as in nothing wrong). She had had to deal a whole lot with insurance too, or lack thereof. Can you please update us on your current health status. Thank you so much. Blessings <3
121 2 . Reply
Jennifer Isaac . 2017-06-28
I have severe stage 4 Endometriosis. We need a cure, and Endo awareness needs to be known, as there is 176 million women world wide. Thank you, for the amazing video.
121 2 . Reply